contact me at neodba.info@gmail.com.

Thursday, May 2, 2013

pharc support on facebook

PHARC is now on Facebook. I have created a support group and
information center for people with PHARC and their families.
PHARC (Polyneuropathy, Hearing Loss, Ataxia, Retinitis
Pigmentosa, Cataracts) is an extremely rare genetic condition. In
order to understand, we must come together. You will find out you
aren't alone.

To join PHARC Support on Facebook, simply search for "pharc
support." This is a close group.

Please spread the word about this new Facebook group. I look
forward to meeting other people whose lives have been affected by
PHARC.

Angie C. Orlando

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